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7月31日 Dylan's cardiologist appointmentIve been missing for quite awhile now - well only from my own blog. I still read my favourite blogs religiously and keep myself up to date. I often start to type an entry here and then stop half way and change my mind about posting. Sometimes the memories are just too painful. Ive been thinking I might start another space but will let everyone know when and if I get around to doing it. Just looking at this blog makes me depressed ! I need a change. A fresh look because I need to focus on the positives in my life rather than the negatives. I have been happy lately. Dylan does something new every day which makes me laugh. I look forward to the future and each and every milestone he reaches. I think about my little boy Alex every day but I dont have time to dwell on how much it sucks that he isnt here playing with his little brother. I still dont think it was 'meant to be' or 'gods will' or other crap that people say but I have accepted that I cant turn back the clock and bring him back. Its my story. Its my past. I always tell anyone who asks that I have two children. An angel in heaven and one here on earth.
Anyway - we are doing well. Dylan had a follow up cardiologist appointment today and his heart looks good. The hole in his heart is closed and its pumping well so we only need to go back for a check up in 6 months time. Dylan is growing and has become really chubby now. I hope to post some photos so you can all see how much he has changed. He has just got over a chest infection which was quite nasty as he had several days of fever and projectile vomiting but he is over the worst of it now and is healthy again.
We are partcipating in a research project that the Royal Childrens Hospital are doing on development of babies who have had cardiac surgery in the first 3 months of life. Basically it involves 4 assessments over two years for Dylan. They video tape him for 30 minutes each time. I think they are trying to see whether heart surgery in the first months of life causes any brain damage or developmental delays. We have agreed to partcipate but to be honest I would have much more interested in partcipating in a research project that involved CDH. Anything to help find a cure.
I'm off to bed now. Dylan has been sleeping through the night which has been great as Im now getting 8+ hours of sleep each night but I need it because its so exhausting keeping him entertained during the day. Not that Im complaining !!
Good night !
PS I just tried to put up a few photos but of course the damn thing isnt working so I will try again tomorrow.
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